• Article: Jul 21, 2016

    As three of the disabled people and the parent of a fourth who in 2013 and 2014 brought legal challenges to the decisions by Conservative ministers to close the UK-wide Independent Living Fund, we are concerned by the developments in the Labour Party over the weekend and the threat to Jeremy Corbyn's leadership.

  • Article: Jul 21, 2016

    What has happened to this country? What is going on? We really do seem to be becoming a nation full of some very nasty people and I don't like it. All I am seeing at the moment is story after story, report after report, news item after news item, on social and in mainstream media, of racist and xenophobic attacks and mind-boggling hatred towards our fellow man and woman. It's horrible. Even though it's now been a week since the Referendum, since we voted to leave the European Union, it's going on and on and on. The hatred and racism is not abating in any way that I can see, if anything, it's getting worse. According to newspapers and the news bulletins I've seen, read and heard just today, racist hate-crime has increased fivefold in the last week. A truly terrifying statistic and not a Britain I want any part of. People are being abused just because of where they were born, because of the colour of their skin and it has to stop.

  • Article: Jul 18, 2016

    An EDSer friend shared this with me, and in honor of EDS Awareness Month I wanted to pass it along. The original author is unknown, but it is a perfect way to describe our lives to those without EDS. Perhaps, you might want to send it to some of your friends and family, as well. I know in my circle, I have a few people that I think really should read it. I don't know if they will, but it is worth a shot. Good luck friends, zebras, spoonies - we are just just part of one big family on Mother Earth, one big family with really messed up collagen. ;)

  • Article: Jul 18, 2016

    I am the child that looks healthy and fine.

    I was born with ten fingers and toes.

    But something is different, somewhere in my mind,

    And what it is, nobody knows.

    I am the child that struggles in school,

    Though they say that I'm perfectly smart.

    They tell me I'm lazy -- can learn if I try --

    But I don't seem to know where to start.

    I am the child that won't wear the clothes

    Which hurt me or bother my feet.

    I dread sudden noises, can't handle most smells,

    And tastes -- there are few foods I'll eat.

    I am the child that can't catch the ball

    And runs with an awkward gait.

    I am the one chosen last on the team

    And I cringe as I stand there and wait.

    I am the child with whom no one will play --

    The one that gets bullied and teased.

    I try to fit in and I want to be liked,

    But nothing I do seems to please.

    I am the child that tantrums and freaks

    Over things that seem petty and trite.

    You'll never know how I panic inside,

    When I'm lost in my anger and fright.

    I am the child that fidgets and squirms

    Though I'm told to sit still and be good.

    Do you think that I choose to be out of control?

    Don't you know that I would if I could?

    I am the child with the broken heart

    Though I act like I don't really care.

    Perhaps there's a reason God made me this way --

    Some message he sent me to share.

    For I am the child that needs to be loved

    And accepted and valued too.

    I am the child that is misunderstood.

    I am different - but look just like you.

  • Article: Jul 18, 2016

    Nurses and healthcare workers have been issued with new guidance on caring for people with learning disabilities.

    The toolkit provides advice on health issues ranging from how to take someone's temperature to how to resuscitate them. It has been drawn up by social care organisation Turning Point with the aim of helping services improve the physical health of people with learning disabilities and their quality of life.

  • Article: Jul 17, 2016

    The percentage of DLA to PIP claimants who get any award at all of PIP has fallen from a high of 80% in March 2014 to 70% in April 2016. That's almost one in three people who are losing out entirely, with no explanation as to why decisions are becoming harsher.

    Meanwhile, the award rate for fresh claims for PIP has plunged even more dramatically. In March 2014 62% of new claimants got an award of PIP, this had fallen to just 42% by April 2016. Again, there is no explanation of why so few awards are being made.

  • Article: Jul 17, 2016

    Stephen Crabb Secretary of State at DWP addresses All Party Parliamentary Group on Disability AGM.

    Over seventy observers, MPs and peers heard the Secretary of State at DWP Stephen Crabb repeat his commitment that the planned saving in personal independence payment would not be sought from cuts in welfare payments elsewhere affecting more disabled people.

  • Article: Jul 16, 2016

    While the country is entrenched in the mire of the EU referendum fallout, the Tories have just been slammed by the United Nations (UN) - for human rights abuses.

    But not abroad. Here, in the UK.

    As The Canary previously reported, on the 15 and 16 June the UN Human Rights committee on economic, social and cultural affairs publicly reported its questioning of the Tories, after more than two years of evidence-gathering concerning the impact of their policies on society.

  • Article: Jul 16, 2016

    Who was it that decided that hatred and bitterness and back-stabbing and nastiness were ever OK?

    Well, as far as I am concerned, they aren't and I've had enough.

    Since Friday last week both Social and mainstream media has been full of nothing but hatred and doom and gloom and narrow-mindedness and I can't stand it any longer. I know that there are people who are really happy about the Referendum result, I know that there are people who are really unhappy about it but all this gloating and loathing and racism and bigotry is all wrong and very unhelpful. Just today I have seen videos of a racist rant from a young person being made towards an older black guy on a tram in Manchester and reports of a firebombing attack on an Asian wholesalers which destroyed a family's livelihood in Walsall. Thankfully, in neither incident was anyone killed or seriously injured but this is not something that should ever be considered to be acceptable. And then there are all the men and women who are being told to pack up and go home. Forgive me but these people are home. They were born here, in many cases, their parents were born here, their children were born here, their jobs are here, their lives have been spent almost in their entirety in this country. What are they supposed to do, where are they supposed to go? This is their home, this is where they belong and they should not be harassed or hounded or intimidated. They should be able to continue with their lives in peace and security. Then there are the other people, the people that voted on Friday, one way or the other. All I am reading and hearing about at the moment are families that are fighting amongst themselves over the dinner table, loving relationships that are falling apart, life-long friendships that are coming to a bitter end. I, myself, have had to 'unfriend' two people on Facebook that I thought were people that I liked and agree with but whose views have turned out to be at polar opposites from my own views. We might not live in a lovey-dovey, fluffy pink world but violence and intolerance and inhumanity has never been the the answer to anything.

  • Article: Jul 4, 2016

    So. Today is voting day for the Referendum which means I have had to get up. I don't do getting up every day but today is too important not to so I am now sitting in my wheelchair and I'm not entirely happy about it.

    For those of you that don't know me or my situation, let me explain.

    I should start by saying that, for me, the wheelchair scenario is nothing new. I have been a full-time wheelchair user for nearly twenty years now so you'd think I should be used to it by now, and in most ways, I guess I am. But, over the past two years, things have changed dramatically. My impairment has deteriorated markedly and, because of this, I now spend most of my time in a hospital type bed in my living room. I get up a mere three or four times in a month to go out but bed is where you will normally find me. I would love to be able to get up more often, most of the time if I'm honest, but, thanks to my rotten, horrible, massively uncomfortable NHS wheelchair, I can't.