Councils 'failing disabled young'

LDDA - The Liberal Democrat Disability Association <info@disabilitylibdems.org.uk>

Councils 'failing disabled young'

January 30, 2007 8:06 AM

Thousands of severely disabled young people are being let down by local authorities who fail to plan care for them as adults, a report has said. The Commission for Social Care Inspection is calling for urgent action to ensure disabled children continue to get the help they need into adulthood.

Inspectors found for many the prospect of their 18th birthday was a nightmare. Many have no idea where they will live or who will look after them when they grow up. The report criticises local authorities for failing to plan ahead and to consult young people about their futures.

Half the 52 authorities surveyed in the report said that they had much less money to spend on disabled adults than on disabled children - which made it impossible to offer them the same levels of care.

Dame Denise Platt, CSCI chairman, said: "Our study shows that councils need to start planning early to ensure that young people with disabilities have the chance to lead as independent a life as possible once they reach adulthood. Young people should expect to maintain their quality of life as they move into adults' services. It is a waste of resources - as well as a waste of young people's potential - if the support they are given as children is not continued into adulthood, and if they end up in expensive residential care that restricts their independence, often many miles away from their own home."

The report calls for councils and primary care trusts to work together to develop and commission seamless services that offer choice and independence to people with complex needs as they go from childhood to adulthood. It says improvements have already taken place in some areas of the country but generally there is inadequate commissioning of services, poor co-ordination and a failure to properly plan ahead with young people and their families. This results in delays, multiple assessments, confusion and anxiety for all concerned, it says.

Agnes Fletcher, director of policy and communications at the Disability Rights Commission, said there was a chasm between the support disabled people received in childhood, and as adults. She said: "This report exposes the effects that the cold, dead hand of adult social services has on young disabled teenagers wanting to make their way in adult life.

Many of these young people will be forced to forget their aspirations of going on to further education or being supported to live independently. Families have to negotiate a cats cradle of costly red tape, but tightening eligibility criteria mean that incredible strains are placed on parents to negotiate support from a system that rarely provides what is actually needed. Without the proper investment in these services, these families are steered into a spiral of dependency and poverty. Young adults are forced back on their parents to meet their care needs, parents are forced to give up work and on to the benefit system with no possible means of escape."

About 13,000 young people with disabilities are in long-term residential care in the UK at any time.