News

Disability campaigners urge Labour MPs to unite behind Jeremy Corbyn

As three of the disabled people and the parent of a fourth who in 2013 and 2014 brought legal challenges to the decisions by Conservative ministers to close the UK-wide Independent Living Fund, we are concerned by the developments in the Labour Party over the weekend and the threat to Jeremy Corbyn's leadership.

21 Jul 2016
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Hating the haters.

What has happened to this country? What is going on? We really do seem to be becoming a nation full of some very nasty people and I don't like it. All I am seeing at the moment is story after story, report after report, news item after news item, on social and in mainstream media, of racist and xenophobic attacks and mind-boggling hatred towards our fellow man and woman. It's horrible. Even though it's now been a week since the Referendum, since we voted to leave the European Union, it's going on and on and on. The hatred and racism is not abating in any way that I can see, if anything, it's getting worse. According to newspapers and the news bulletins I've seen, read and heard just today, racist hate-crime has increased fivefold in the last week. A truly terrifying statistic and not a Britain I want any part of. People are being abused just because of where they were born, because of the colour of their skin and it has to stop.

21 Jul 2016
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Open Letter to Those Without Ehlers-Danlos Syndrome

An EDSer friend shared this with me, and in honor of EDS Awareness Month I wanted to pass it along. The original author is unknown, but it is a perfect way to describe our lives to those without EDS. Perhaps, you might want to send it to some of your friends and family, as well. I know in my circle, I have a few people that I think really should read it. I don't know if they will, but it is worth a shot. Good luck friends, zebras, spoonies - we are just just part of one big family on Mother Earth, one big family with really messed up collagen. ;)

18 Jul 2016
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