News

Open Letter to Those Without Ehlers-Danlos Syndrome

An EDSer friend shared this with me, and in honor of EDS Awareness Month I wanted to pass it along. The original author is unknown, but it is a perfect way to describe our lives to those without EDS. Perhaps, you might want to send it to some of your friends and family, as well. I know in my circle, I have a few people that I think really should read it. I don't know if they will, but it is worth a shot. Good luck friends, zebras, spoonies - we are just just part of one big family on Mother Earth, one big family with really messed up collagen. ;)

18 Jul 2016
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PIP AWARD RATES

The percentage of DLA to PIP claimants who get any award at all of PIP has fallen from a high of 80% in March 2014 to 70% in April 2016. That's almost one in three people who are losing out entirely, with no explanation as to why decisions are becoming harsher.

17 Jul 2016
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Stephen Crabb reaffirms no PIP cuts

Stephen Crabb Secretary of State at DWP addresses All Party Parliamentary Group on Disability AGM. Over seventy observers, MPs and peers heard the Secretary of State at DWP Stephen Crabb repeat his commitment that the planned saving in personal independence payment would not be sought from cuts in welfare payments elsewhere affecting more disabled people.

17 Jul 2016
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